Privacy Policy

1. Overview of This Privacy Policy

This Privacy Policy outlines how RARE Hope gathers and safeguards personal information when you visit our website at www.rare-hope.org, respond to surveys, or become a part of our online community. It does not apply to the collection of personal information through other websites or methods beyond this Site.

RARE Hope is dedicated to protecting your privacy. Any personal details you provide will only be used as stated in this Privacy Policy.

We will never sell, share, or lease your personal data to third parties unless we have your consent or are required to do so by law. We may use your personal information to send you updates or information we believe could be of interest to you. This policy may change over time, and we encourage you to review this page periodically to ensure you understand and agree with any updates.

By accessing and using the Site, you fully accept our practices regarding the collection, usage, and sharing of your personal information as outlined in this Privacy Policy. If you disagree with any part of this policy, please refrain from using the Site.

This Privacy Policy is effective as of March 2025.

2. Information We Collect

Actively Collected Information

Our Site allows users to learn about RARE Hope and contribute to our research and causes, including making donations, forming or joining fundraising teams. While you may browse the Site without providing personal details, registration or use of certain services may require you to submit personal information, such as your name, email, postal address, demographic details, location, images, videos, and any other data you voluntarily provide. If you contact us via email, we may also collect your email address.

If you make a donation, we may ask for your full name, billing address, email, phone number, credit/debit card details, and other financial information needed to process the payment. We may also inquire whether your employer will match your donation or if your estate plan includes RARE Hope.

Passively Collected Information

We may automatically collect certain information through tracking technologies like Google Analytics. This includes data such as the website domain you came from, the search engines used, your IP address, the duration of your visit, the pages viewed, and other relevant statistics. This helps us improve our website's user experience.

  • Log Information: Our servers may automatically record technical details such as your IP address, browser type, operating system, and the pages you visit. This information helps us manage the Site and improve its functionality.

  • Links: We may track clicks on certain links to measure user engagement and improve our content.

  • Cookies: Cookies are small files stored on your device that help us personalize your experience by saving preferences or tracking browsing habits. While cookies do not allow access to personal data, disabling them may limit your ability to use certain features of the Site.

  • Web Beacons: These tiny images track users’ interactions with the Site or emails we send, helping us improve services and track responses.

3. How We Use Personal Information

The personal data we collect may be used for:

  • Processing donations and managing donor records.

  • Communicating with you about our programs, research, and fundraising efforts, such as newsletters or organizational updates.

  • Responding to your queries or requests.

  • Conducting audits, research, and analysis to improve our services.

  • Developing new offerings or enhancing the Site’s functionality.

4. Sharing Personal Information

RARE Hope does not sell, rent, or trade your personal information. However, we may share it in the following circumstances:

  • Affiliates and Subsidiaries: We may share your information with affiliated organizations for administrative and operational purposes.

  • Service Providers: We may share your information with third parties who perform services on our behalf, such as web hosting, data analytics, and payment processing.

  • Google Analytics: We use Google Analytics to analyze Site usage, employing cookies to collect data on how you interact with the Site. This data helps us improve the user experience.

  • Third-Party Payment Processors: When making donations, your information may be shared with payment processors, though RARE Hope disclaims responsibility for the actions of these third parties.

  • Legal Obligations: We may disclose your information in response to legal requests or to comply with legal requirements.

  • Business Transactions: In the event of a merger, acquisition, or sale of all or part of RARE Hope, personal data may be transferred.

5. Aggregate Information

We may aggregate personal information and other data collected from the Site for analysis, reporting, or improvement of our services. This aggregated data does not personally identify users and may be shared with third parties for legitimate purposes.

6. Your Choices

You have control over the personal information you provide. If you choose not to provide certain details, some Site features may be unavailable. You can update your preferences or request corrections to your data by contacting us.

7. Communication Preferences

If you no longer wish to receive communications from us, you can opt-out by emailing us at support(at)rare-hope.org or writing to:

RARE Hope
4645 Hawthorne Lane NW
Washington, DC 20016

8. Updating Your Information

We encourage users to keep their information current. You may update your personal details by contacting us at support(at)rare-hope.org or sending a letter to:

RARE Hope
4645 Hawthorne Lane NW
Washington, DC 20016

9. Data Security

We take reasonable precautions to protect your personal data from unauthorized access, loss, or misuse. The Site uses security protocols like SSL technology, but please note that no online transmission is entirely secure. If you suspect your data may be compromised, please contact us immediately.

10. Children’s Privacy

The Site is not intended for individuals under 13, and we do not knowingly collect personal information from children under this age. We request that children under 13 refrain from submitting any personal details.

11. External Websites

Our Site may link to third-party websites that are not governed by this Privacy Policy. We are not responsible for the privacy practices of those websites, and we encourage you to review their privacy policies before sharing any personal information.

12. International Users

RARE Hope operates in the United States, and if you access the Site from outside the country, you are responsible for complying with local laws. Any information you provide will be transferred to the U.S., and by submitting data, you consent to this transfer.

13. Policy Updates

We may update this Privacy Policy without prior notice, and we will post any significant changes on the Site. Please review this policy periodically to stay informed of any updates.

14. Questions About This Privacy Policy

For any questions or concerns regarding this Privacy Policy, feel free to contact us at support(at)rare-hope.org or send a letter to:

RARE Hope
4645 Hawthorne Lane NW
Washington, DC 20016